"I'm still here"
A comprehensive report offering insights into living and dying with advanced breast cancer in New Zealand
This year, about 300 New Zealanders will be told they have advanced breast cancer (ABC) – also called secondary, or Stage Four, or metastatic breast cancer. Breast cancer that has spread to another part of the body and is incurable.
Most of those 300 people – mainly women, but also a few men – will do everything in their power to stay alive, to stay with their families for as long as possible.
They’ll become part of the constantly changing population of Kiwis living with ABC. Their struggle will take place out of the spotlight that celebrates the “success stories” of early breast cancer survival. Many of them will end up feeling unseen, forgotten, isolated. They’ll feel that the health system has turned its back on them.
In September 2018, Breast Cancer Foundation published “I’m Still Here”, a report offering insight into what’s really happening in ABC care. The report combines the output of three studies commissioned by BCFNZ: a survey of medical professionals; a patient survey; and the first statistical analysis of data about advanced breast cancer treatment and survival from the Breast Cancer Foundation National Register.
We learned that New Zealanders with ABC die faster than people in other countries, that many of them get less treatment, and that the health system disadvantages them in many ways. This needs to change, right now.
We’ll be advocating to government for a better deal for Kiwis with ABC.
You will find our call to action in both the full report and executive summary.
Following the release of our report, we invited Dr Fatima Cardoso, a world expert in advanced breast cancer, to share her knowledge in New Zealand. While here she spoke to patients, doctors and Ministry of Health representatives. We're grateful for the insights she provided. Click here to watch her patient seminar.
|Download Full Report||Download Executive Summary|
Dr Fatima Cardoso presentations
From passenger to co-driver: taking a front seat in your ABC care
In January 2019, Dr Fatima Cardoso, a world expert on advanced breast cancer (ABC), addressed ABC patients and their supporters at a lunchtime seminar in Auckland.
What relationship should I have with my oncologist? What should I know about lines of treatment, and is there a place for complementary therapies? What factors can help my quality of life?
ABC patient interview with Dr Cardoso
During her visit to New Zealand, world ABC expert Dr Fatima Cardoso was interviewed by Jane, a Kiwi living with advanced breast cancer. A recording and transcript of this interview are now available.
You can read the transcript here: